Hanging by a thread, in a very uncertain state, unlikely to survive or succeed is how the Collins dictionary defines ‘FILIPENDULOUS’.  It’s how I felt when the Neurologist told me I may have ALS (Amyotrophic Lateral Sclerosis) or Motor Neuron Disease (MND) as they name it in the UK.  That was December 2016.  A significant number of tests and a cycle of IVIG followed and finally the diagnosis was confirmed in March 2017, my thread started to unravel!  Life as I knew it would never be the same again.

I decided to name the blog Filipendulous not because it described my uncertain state or the fact that I was unlikely to survive, both of those are given, but because it reminded me of a spider’s thread.  By density and weight the silk thread is stronger than both steel and kevlar.  Could my will, determination and resilience be combined to create a dragline able to absorb the daily assault of ALS on my physical being?  I know with certainty that the physical will continue to be battered, how well this dragline suspends the soul in uncertainty is what will be tested.  I am therefore hoping that Filipendulous is able to document the characteristics of this dragline tethering my soul and that you will be able to share and support this process.

#ChallengeALSDXB